Spoke a little to soon about getting off the prostins. Although the O2 helped a little, he still needed to start back up again at 2 this morning. At least now it seems like cardiology does agree that he has some need for that little extra bit of mixing the prostins allow him to maintain. They are planning to do a repeat echocardiogram (ultrasound of the heart) and hopefully make a plan from there. They will still discuss his case at conference tomorrow. In other news, he is completly off IV nutrition and up to about 2 ounces of breast milk per feeding. He has never had any problems with food, not surprising for one of my babies.
He continues to be plauged by name mistakes. The labels they have printed for me to label his bottles of milk have the St in Stratman cut off and they are printed in all caps, so it appears as if his name is Ryan Ratman.
Pictures of Ryan
Ryan - 3 days after surgery
Ryan - 3 months after surgery
Ryan - 6 months after surgery (you can barely see his scar!)
About Me
- Brandi
- I am a proud mom of three boys. My youngest was born with a congenital heart defect known as Transposition of the Great Arteries or TGA for short. The defect was succesfully corrected at Children's Mercy Hospital when he was 12 days old. I started blogging during his hospital stay as an update tool for family and friends. Because I have learned a great deal reading about other peoples experience with TGA and other CHD’s, I have chosen to continue the blog in hopes that someone else may learn from or take comfort in our story and also to record other items and events about my family I would like to remember.
1 comment:
Good thing Ryan has very patient parents, he just want to do things in his own time and his own way :) Keep up the good working feeding Ryan!!
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